When I say I have seizures, I mean full Tonic Clonic seizures. I become unconscious, shake and am in and out of consciousness for a good half hour before I wake up with a very sore tongue from biting it, and feel like I am very hungover for the next day. I hate letting my diabetes hold me back, so I became so anxious of my blood sugar dropping, that I often used to let my blood sugar sit higher to prevent myself going low, which meant I was unwell a lot.
In April of this year, I woke up one morning, tested my blood sugar and it was 9 mmol/l. The next thing I know, I had a seizure. This was strange for me, because I had never had a seizure without my blood sugar being low, so this triggered a thought. Maybe low blood sugar was a trigger for seizures, and not the cause. I went to my GP with this, and after examining me to make sure there wasn't another cause, she agreed this was a possibility, and she referred me to a neurologist.
This is such a personal issue for me, as it causes me so much anxiety about day to day tasks. I have had seizures on the bus (3 times) and walking home, so it's hard for me to think about the possibility of me having seizures that are near impossible to prevent. I still sometimes get upset about the fact that I can't get my driver's licence because of these seizures, and the fact that if I have a seizure, I have to put the people around me at an inconvenience (which did happen at my flat at university).
I had my appointment at the neurologist, I explained everything that has happened with my low blood sugar seizures, and the one I had when my blood sugar wasn't low. She called my mum, who had seen me have the seizures, and could explain what they looked like, and how I reacted. The neurologist then went on to tell me that I had epilepsy and that, as I had predicted, low blood sugar was just a trigger to the seizures, rather than the cause. She put me on tablets to hopefully control these seizures, and said I had to go for a EEG and an MRI of my brain to find out more about my epilepsy.
I was really upset about having another thing to deal with, another label put on my head. I already have Type 1 Diabetes, now I have to declare on forms that I also have epilepsy. After the neurologist told me, I just walked around the city where I live, trying to process things, and get my head clear, before I could tell anyone.
I have been on the tablets prescribed to me for over a month now, with no visible side effects, and I haven't had a seizure since April. I still don't know whether this is because I haven't had any bad hypos or because of my new tablets, but I am trying to control my Type 1 Diabetes better, as I don't like feeling unwell all the time. I am hopeful that in the future I won't have any anxiety about living my life, or going on the bus myself, and that maybe one day I can get my drivers licence.
Until next time,