Wednesday, 6 July 2016

A Sister's Perspective

I asked my little sister, Iona (age 15) to do a guest blog for me. She decided to write about what it is like to be a by-stander of my diabetes. This is what she had to say:

It was the scariest thing waking up to hear Alyssa's pump alarm going off. I always feel a responsibility to help her out of her lows before she descends so low and is beyond helping. Initially, I told her to take a drink of Lucozade or take some glucose tablets, but she was still half asleep so was very stubborn. Eventually she agreed to take something. I thought nothing of it and fell back in to a relatively light sleep but kept one ear open for any signs of unusual sounds coming from the other side of the room. When her alarm went off again it really put me in to a panic. Waking her up was a scary moment because I worried that she was unable to wake but she did. Then I noticed something strange. She was jerking. When I told her to stop jerking, I realised she was unaware of the involuntary movements of her body. I had found out from previous experiences that this "jerking" was an early sign of an oncoming seizure. After learning this information I REALLY panicked and decide this was too much for me to handle alone, and I called my mum in a panic. She started Seizing and I noticed she started to pull her hair and make a screaming motion with no sound. I was sent to fetch the Glucagon that would bring her blood sugar back up, while my mum and brother stayed with Alyssa. At this point I was in tears and was no help to anyone so I just stayed out of the way of my tearful mum. So far the Glucagon has always worked and Alyssa has eventually come round but its very scary until she does.

Me and my little sister
One of the most recent seizures she had was when we were walking home from school.  She told me she was going low and treated herself with Lucozade whilst still walking home - I know now this was a mistake and she should have stopped and waited for the Lucozade to work. We had almost made it home and were at the top of our street when she collapsed and started shaking.  I ran home and got the Glucagon while Alyssa's friend phoned the ambulance. I managed to open the box and load up the Glucagon injection but was crying too much to inject so a passer by did that for me. I had to phone my mum to come. Lots of people gathered and everyone was really nice but it was a horrible thing to happen.

Going out with Alyssa now is always a struggle for me because I am constantly worried that she will have a seizure and I will be alone and responsible for it. I tend to avoid going out with her alone to try and avoid the worry that's takes over my brain when I do. I feel really bad for that because it makes her feel upset but it's the only thing that will work for me. Sometimes she gets really angry at me because I never do things with her but It's not my fault I feel this way!